This is not something I have shared on the blog before, but Jackson has some vision / eye problems. In addition to an astigmatism, which is what I also have glasses for, he has strabismus and accommodative estropia, which basically means his eyes don’t align on their own because of very weak muscle control in one eye. Although he will always wear glasses for the astigmatism, there is a very real chance that he will have to have surgery at some point to help fix the eye muscles. The thought of this is beyond terrifying for us. Of course, we want what is the absolute best for our kids, but the idea of his tiny body being under anesthesia, even for what would be a “simple” surgery, is enough to make me go insane. Luckily, the eye doctor we have been working with for the past year, has come very highly recommended and specializes in pediatric cases. He has performed tons of these surgeries before and said he’s never had an issue with a child dealing with the anesthesia. It is still a scary thought though, but something we are really trying not to worry about too much until (and if) we get there. One of the things I love about this doctor is that he has not been pushy at all. He takes the time to listen to our concerns, he’s amazing with Jackson, and he really thoroughly examines the eyes at every appointment to monitor progress, or lack thereof, so we are not just jumping right into unnecessary surgery. I honestly feel like a lot of doctors would not have invested this much time and would have initially suggested the surgery at the beginning. I am so glad we are all on the same page with this; we wouldn’t have it any other way. Should the time come that he needs surgery, we are very comfortable with this man being the one who performs it.
Throughout everything, Jackson has been such a trooper. He has had to wear funny goggles on his face, look at silly images on screens while sitting still, and have his eyes dilated to a very uncomfortable level. The doctor has been very impressed with his willingness to comply. We even got prescription drops that we had to use for a full 24 hours before his appointment so the doctor could get an even better look inside his eyes. He commented on how interesting it was because he never gets that much visibility inside the eyes at that level of dilation because toddlers are mostly unwilling to cooperate.
At our last appointment, the doctor suggested trying patching for a while to see how much it would help. Basically, we put a patch over Jackson’s strong eye, so he cannot see anything out of it. This makes the weaker eye focus more and forces him to use those eye muscles. He said, having a toddler himself, he knows how crazy it might be, but it was so important to use the patch regularly. He said that two hours was recommended, if Jackson could even handle that, but four hours of patching per day would be ideal for him. He explained to us that people notice that their kids are uncomfortable with the patch so they just discontinue use. He wanted us to think of it as medication. He said something that stuck with me, which was “If Jackson has an ear infection, you are going to treat him with antibiotics so he heals, right? Think of the patch as medication for him.” This was all I needed to hear to get it to truly sink in and to vow to myself that we would use the patch as directed.
I have to say, I am so incredibly proud of this little man. We left the doctor’s office that day with sample patches, and put the first one on right after nap time. I made such a big deal about how special it was for Jackson and how it was going to help him. I explained to Taylor and Joseph that they were not to touch it at all, and they needed to remind Jack about how cool he looked while wearing a patch. From that day forward, he has been patching for four hours per day! He made the transition so easy for himself and for us, that I honestly still can’t believe it. The one thing that was an issue for the first week or so was that Jackson had a semi reaction to the glue used on the patch. It hurt his face, irritated his skin, and left his eye red and swollen. Even though it went away quickly, I could tell how uncomfortable he was and knew I needed a different solution. I could easily see how parents would become discouraged with patching and stop it altogether. I remembered that the doctor had told us that they make such a thing as cloth patches, so I looked into a few companies who offered them. I found one small company called FrameHuggers, and read all the info on their website and was amazed with what I saw. There website can be found here. They offered patches in nylon (which is quite breathable and light weight; perfect for the hot summer we are having). These patches slide over the frame of his glasses, so no glue or anything touches his face. I was incredibly skeptical and figured it would not work. Since the boys are so aptly nicknamed “the tornado twins,” I figured it would be something that one of them would constantly be pulling off. I assumed that the product wouldn’t work because he would be able to see out of the side of it. After watching videos and reading reviews, I was hooked. I was even more excited that they offered free customization. I, of course, ordered the New York Rangers logo on the patch, and it was here in less than a week. The woman who owns the small business, Camille, was a pleasure to work with and is a true professional. Jackson was so incredibly excited to open the package and see his “hockey patch.” He wanted to put it on right away and has been excited to wear it ever since. It’s lightweight, easy to put on and take off, and adorable. It does what it supposed to and blocks his vision all around, including his peripheral vision. He affectionately calls it his ‘hockey’ and says “See you tomorrow, hockey!” every time we take it off. I am so glad that I found this business and am so happy to share the information with other parents, because as I said, we had no idea that this was an option! My baby is so much more comfortable and confident with this cloth patch, and I can honestly 100% say that I have noticed a difference in his eye already, which is so encouraging.
As always, I am more than happy to answer any questions, so please feel free to email me at twinsandtiaras@gmail.com.